Welcome to SYNGAP1 UK

SYNGAP1 UK is a national organisation supporting individuals and families affected by SYNGAP1-related intellectual disability. Our mission is to connect the SYNGAP1 community across the UK, raise awareness, and advocate for better understanding, care, and research.

We provide trusted information, peer support, and opportunities to take part in events and initiatives that bring families, clinicians, and researchers together. Whether you are newly diagnosed or have been part of the SYNGAP1 community for years, you are not alone, we are here to support you every step of the way.

Join us as we work to build a stronger voice for those living with SYNGAP1 in the UK.